God really has his hand on this whole situation and Wednesday was no exception. I went to bed on Tuesday night exhausted and woke up Wednesday morning stewing about Reece’s teeth. Terry and I easily came to a joint decision that we would likely not allow the dentist to pull Reece’s teeth.
Reece and I headed over to the dentist’s office and as we were walking into the lobby, this is the dialogue we had (remember, it was 7:20 am):
Reece: “Mommy, I am so tired. I’m not sure what is wrong with me.”
Me: “Well, buddy, I think it might be your ‘special blood’ that is making you feel that way. And you know what?”
Me: “I think we might need to get you some new blood.”
Reece went on to acknowledge he heard me, but then commented in a very 4-year-old way, muttering something completely unrelated. I can’t remember what exactly it was. These are the moments I am trying to use with him to prep him for whatever conversation we decide to have with him prior to next Tuesday. I feel like everyday dialogue as it naturally comes up will sit better with him versus trying to pin him down for 15 minutes and tell him everything at once. I know he was listening and will remember what we talked about. My family has been noticing he has been much more tired the last six weeks or so, but this was the most obvious acknowledgement by him that this is more than regular tiredness. It supports our need to transplant, which in some obscure way makes me even more confident we are doing the right thing.
We head into the dental office–Reece actually loves his pediatric dental office–and are ushered to the back for x-rays of his impacted teeth. He had regular x-rays done in August on his other teeth that looked great with no signs of cavities, so this check-up was focused on the progress of the teeth that were impacted by the accident. It turns out, the x-rays revealed nearly a perfect recovery! Had we not known about the accident, one would never detect there was anything that happened to those teeth. They did a brief cleaning and gave us a special, highly concentrated fluoride to paint on his teeth every three months in an effort to keep his teeth healthy. (A side effect of chemo & radiation is mouth sores. We will likely not be able to brush his teeth for a while, but rather, wipe his teeth off to keep them clean and to prevent his gums and tender mouth from bleeding.)
While we were at the dentist, Terry received a call from Reece’s doctor at the U of MN stating the test for Shwachman-Diamond syndrome had come back negative. It was the last test they had ordered to rule out any other cause for his chromosome abnormality. Thus, he has “garden variety” MDS with monosomy 7, if you can actually call it that. I’m not sure that learning this is good news, it is just news.
As Reece and I were walking in the door back at home, the nurse coordinator called regarding Reece’s teeth. She told me there was no need to pull them! If they fall out on their own during this process, so be it. This delighted me! And thank-you, God, for a “yes”–finally! It might be a small one, but I’ll take it.