It’s been a few days, so here’s a quick update. The weekend overall went well for Reece. He continues to recover from his latest oxygen bout, but overall, he is doing very well. We are starting to feel trapped in the cycle of Reece gaining momentum, having a minor setback, new doctor rotates on, takes awhile to get up to speed, delay because of predictable and avoidable complications, another minor setback, and so on. Hopefully, we will be out of here this week, but I’ll admit I am not planning on it. You can tell Reece has maxed out on his being here and ability to be motivated to improve while here. You can’t blame him–he is the veteran on the floor. No one else has a transplant date even remotely close to his, although there are a few kids that have been discharged and have returned. His recovery will likely increase dramatically once is at home and able to be in a different environment. I’ll keep you posted.
- Complete wean off of oxygen
- Continued progress in BMT and freedom from fevers/infections
- Regulation of weight to avoid further lung setbacks
- Discharge, remission, life
In baby news, it looks like we will be scheduling a c-section, as this baby does not want to go into the proper position. It isn’t because she can’t move around. She has done a complete 360 degree turn in the last week–but has stayed in a breech position. She looks good when she is monitored, but I am meeting with a doctor this Friday to schedule the c-section, in case she doesn’t turn and go on her own. The good part about that is I will know who will be delivering the baby (my doctor no longer works in labor and delivery) and I will be able to prep her for the cord blood collection. The not-so-good news is that Reece has many physically demanding needs…both for him and for us. Adding a c-section into the mix seems like one more added complication.
- Baby to turn to correct position
- Smooth labor, deliver, and recovery
- Overall health for baby